Our visit with the new doctor at Children's Mercy went well today. The doctor was very nice and Addie was very well behaved. He seemed impressed with her ability to sit still and let him touch her.... but ever since her trip to the ER, she's a big doctor fan.
He checked all over her body and actually found 2 more tumors that I hadn't found yet. He said he wasn't too concerned with them as of yet, but we'd need to keep an eye on the ones on her ankle and wrist, because those are the ones that tend to become problematic as they can interfere with the two bones that run next to each other (for example, the ulna and the radius of the forearm). He did not take any x-rays today, but has asked to see her again next year, unless any problems arise, at which point he'll be sending her in for x-rays. He'll also be seeing Bethy then too.
Interesting side note: While asking about our family history and such, he asked if my brothers, who also have MHE, are tall or not. I told him how tall they both were. He found it interesting as apparently most people with MHE are very short because the bones spend so much "energy" making tumors that they don't grow very well. Oh, and we all have a very mild case of MHE. I guess most people that have it have many, many exostoses, which tend to really interfere with living. I suppose that's a good thing for us!
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