Well this evening while holding Addie's hand I found another "knot" on her hand. It's on her right hand, at the outer base of her pinky finger. This brings her total, that I've found so far, to 3. I'm pretty upset about finding another one on her body, especially on her hand. I was really hoping they wouldn't grow on her hands, although I had no reason to believe they wouldn't if you take me for the example.
We have an appointment at Children's Mercy in KC in October to have them examined by the specialist. I don't know at this time if they will want to remove any of them or if they will just let them continue on as they are, but I'm worried and sad anywho. The thought of putting her in surgery or denying her the use of her hand, even if only for a small amount of time makes me very sad.
For those of you who don't know, Addie and I have a medical condition called Multiple Hereditary Osteochondromatosis (or MHE)
I'll keep you posted on any more that I find or what the doctor says once October rolls around.
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